Data Requests

Health Data Agency

Data requests enable researchers, healthcare professionals, and policymakers accessing health(care) and health(care)-related data for medical research, healthcare improvement, and policy formulation.

Identify your data

Data catalog

Explore the data catalog to locate and search for specific datasets matching your needs.

  • In case you locate the data that you want to request in the catalog, please document both the name of the dataset and the data provider owning the data. You will need to provide this information when requesting data.
  • In case the data you need is not yet available in the data catalog, ensure that you can provide a detailed description of the data when performing the data request. 

Note that the HDA is an organization in evolution. More and more data will become available in the Data Catalog so always refer to it before continuing to request any data.

Submit your request

Request form

Fill in and submit the request form using the button "Data request form". Once your form is submitted, an HDA Case Manager will analyze it and communicate the next steps.

Note that depending on the type of request, you can expect to receive a follow-up questionnaire to fill in. This second questionnaire is more extensive and will provide the HDA with further information required to process your request. 

Not sure if your request is feasible?

Data request feasibility form

It takes about 2 minutes to find out if your request can be processed by the HDA, by answering a few questions. 

Request processing

Data Request

data request diagram

1. Request submission: A data user looking for data for secondary use formulates a request via the request form available on our website. 

2. Request analysis: The request is assigned to one of the case managers. He/she will be responsible for accompanying the request from submission to closing. The assigned case manager analyzes the request to determine specific requirements, assesses its feasibility and identifies the data holder(s). In case of need for more information, refinements or clarifications, the case manager will contact the data user. 

3. Request dispatching: The potential data holder identified in the previous steps is contacted by the case manager to confirm involvement. In case multiple data holders are involved, depending on the type of request, there might be a need to contact a Trusted Third Party (TTP). This TTP will take care of the coupling and pseudonymization of the data. 

4a. Request validation: The data holder(s) assess(es) the feasibility and formally decide(s) to either accept and move forward with the provision of the data or decline the request. 

4b. ISC involvement: For requests requiring pseudonymized individual data, the involvement of the Information Security Committee (ISC) might be required. If so, the HDA Case Manager will support the ISC procedure to receive the opinion of the committee. If the opinion is negative, the request cannot be fulfilled, and the data user will be informed of the decision. Together with the data user, the HDA case manager will explore alternative possibilities. 

5. Data preparation: The data holder(s) involved in the request will prepare the requested data(set) and its metadata and deliver them to the HDA, an intermediary or directly to the requester depending on the sensitivity of the data. In case multiple Data Holders are involved, they will collaborate on the preparation of the data, with the help of a TTP. 

6. Data received verification: Once the data user receives the data, he/she needs to verify that it answers his/her initial question and provides confirmation to the HDA. 

7. Request closing: With the confirmation that the data is fit for purpose, the HDA case manager closes the request and sends a feedback form to the data user.